I've got a Q5R chair with a fixed platform footrest. This footrest isn't doing my transfers or ankles any good. Either I have to keep my feet too far from the sea to make a safe transfer or I scrape my ankles on the footrest. I'm thinking of replacing the fixed footrest with the flip-back version. But I worry that the flip-back will get my feet too far under the chair and louse up my balance. So before I shell out to make the experiment I'd appreciate comments from anyone who'se used either or both of these footrests. Thanks! - fw
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Footrests for Quickie 5R
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Purchasing bed thru Medicare, how or waste of time????????????
I need to get a new mattress like yesterday, as I have two bedsores on wound vac.
I think the lateral rotation feature will help, and I saw on Medicare.gov that I should qualify for one, I called the vendor listed on the site and heard they have one in stock, BUT, will it take too much paperwork and time?
Thanks
I think the lateral rotation feature will help, and I saw on Medicare.gov that I should qualify for one, I called the vendor listed on the site and heard they have one in stock, BUT, will it take too much paperwork and time?
Thanks
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TiLite ZRA caster broken. Need help in figuring out where and what to get?
Hi guys,
I purchased a used TiLite ZRA Series 1 from eBay back in early 2013. Been using it daily since then. It has gone through a lot, thanks to shitty Indian roads and infrastructure. At times, someone would be pushing my chair and an the right caster would get stuck in an unsuspecting hole/curb in the road, throwing the whole chair with me (heavy) to pivot on that small wheel. Luckily i only fell once, but it has happened a lot. Yesterday, finally, the right caster gave in. It was anyways bearing all the weight, since the left caster had gotten misaligned and was a tad bit higher.
You can see the pics attached to see the status. The nut which goes from fork into the socket attached to frame, looks good but the threads inside the socket are all worn out. There's even a powderish substance formed inside that socket which I'm guessing is broken metal. Now I don't know where to buy that socket which is attached to frame, not even sure if it can be replaced (?)
Should I replace the whole assembly or will I find that small socket? Let's say I wanna replace the whole thing, where do I find these or single forks for TiLite, because Unitine doesn't fit ZRA iirc. I am based out of India, so anything in USD is quite costly for me, but not like I have a choice here. Will try to go for the cheapest way out. Can some veterans tell me what are my options here? It'll be helpful if you also post the website, where I can purchase the recommended parts from. I referred the ZRA manual but the diagrams look different because in them, the nut is attached to the frame and not caster assembly.
For now, I have stuck the caster nut back in, and tightened the screw so tightly that the caster doesn't even swivel freely. Any loose, makes the caster fall because there are no threads in there. Dangerous, I know, but a man's gotta earn.
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Cheers!
chairDroid
I purchased a used TiLite ZRA Series 1 from eBay back in early 2013. Been using it daily since then. It has gone through a lot, thanks to shitty Indian roads and infrastructure. At times, someone would be pushing my chair and an the right caster would get stuck in an unsuspecting hole/curb in the road, throwing the whole chair with me (heavy) to pivot on that small wheel. Luckily i only fell once, but it has happened a lot. Yesterday, finally, the right caster gave in. It was anyways bearing all the weight, since the left caster had gotten misaligned and was a tad bit higher.
You can see the pics attached to see the status. The nut which goes from fork into the socket attached to frame, looks good but the threads inside the socket are all worn out. There's even a powderish substance formed inside that socket which I'm guessing is broken metal. Now I don't know where to buy that socket which is attached to frame, not even sure if it can be replaced (?)
Should I replace the whole assembly or will I find that small socket? Let's say I wanna replace the whole thing, where do I find these or single forks for TiLite, because Unitine doesn't fit ZRA iirc. I am based out of India, so anything in USD is quite costly for me, but not like I have a choice here. Will try to go for the cheapest way out. Can some veterans tell me what are my options here? It'll be helpful if you also post the website, where I can purchase the recommended parts from. I referred the ZRA manual but the diagrams look different because in them, the nut is attached to the frame and not caster assembly.
For now, I have stuck the caster nut back in, and tightened the screw so tightly that the caster doesn't even swivel freely. Any loose, makes the caster fall because there are no threads in there. Dangerous, I know, but a man's gotta earn.
Cheers!
chairDroid
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Flying w/ a smartdrive MX2
Does anyone have first hand experience flying domestically with a smartdrive? I don't see why I couldn't just roll it through security then put it in a backpack and take it on the plane w/ me.
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New to cath. Many UTI's. Worried and scared.
Hi,
I'm very glad to have found this forum. The community is great and I enjoy all the positive stories I read.
I've been paraplegic most of my life (glioblastoma as a child removed from spine), but after having MANY infection stones removed from my bladder, my urologist started me on intermittent self cath. I use Cure Hydrophilic Intermittent Catheters.
Since having the stones removed and starting to self cath, I have been on at least one antibiotic per month due to UTI's. I'm currently experiencing the symptoms of yet another UTI (cloudy smelly urine, slight fever).
My urologist prescribed that, at night, I inject my bladder with 30cc's of saline and neomycin through the night. I'm concerned about this as I've not read about anyone on here using the saline/neomycin mix. Does anyone else do this? Should I be concerned.
I started taking vitamin C, multivitamin, probiotic, and cystex twice a day. I read that some people on this forum were having good results with that. But it did not work this time.
I have so many questions...
Am I stuck going back in for another urine analysis and getting on the Cipro yet again? Is there anything outside of antibiotics that can get rid of this?
I don't think my urologist is a specialist with spinal injuries, but I don't know the first place to look for a specialist in my area, central Florida. Is there a database of specialists that anyone knows about?
Thank you in advance to this great community.
Also, how do I add a profile pic to my profile? Do I need to be approved?
I'm very glad to have found this forum. The community is great and I enjoy all the positive stories I read.
I've been paraplegic most of my life (glioblastoma as a child removed from spine), but after having MANY infection stones removed from my bladder, my urologist started me on intermittent self cath. I use Cure Hydrophilic Intermittent Catheters.
Since having the stones removed and starting to self cath, I have been on at least one antibiotic per month due to UTI's. I'm currently experiencing the symptoms of yet another UTI (cloudy smelly urine, slight fever).
My urologist prescribed that, at night, I inject my bladder with 30cc's of saline and neomycin through the night. I'm concerned about this as I've not read about anyone on here using the saline/neomycin mix. Does anyone else do this? Should I be concerned.
I started taking vitamin C, multivitamin, probiotic, and cystex twice a day. I read that some people on this forum were having good results with that. But it did not work this time.
I have so many questions...
Am I stuck going back in for another urine analysis and getting on the Cipro yet again? Is there anything outside of antibiotics that can get rid of this?
I don't think my urologist is a specialist with spinal injuries, but I don't know the first place to look for a specialist in my area, central Florida. Is there a database of specialists that anyone knows about?
Thank you in advance to this great community.
Also, how do I add a profile pic to my profile? Do I need to be approved?
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Relevant to SCI Studies
Last Week Tonight with John Oliver: Scientific Studies (HBO)
https://www.youtube.com/watch?v=0Rnq1NpHdmw
https://www.youtube.com/watch?v=0Rnq1NpHdmw
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WTB--Handcontrols
Looking for a complete set of Monarch or "like" hand controls.
PM me.
PM me.
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Really want a bath... Lift?
Nearing eight months since my injury I would love to fund ac way to use my bathtub. Showers scare the crud out of me as I'm not very stable in my sliding shower transfer bench.
My tub, unfortunately, has a swooped upper edge (not flat) and is fiberglass and free standing (not solid when empty). It was a great tub before my injury.
I've looked at mounted lifts like Sure Hands but they're crazy money ($8k). Normal lifts won't work as the tub has no clearance under it and the lift legs can't be spread apart enough to straddle a corner of the tub.
Any ideas? New tub?
My tub, unfortunately, has a swooped upper edge (not flat) and is fiberglass and free standing (not solid when empty). It was a great tub before my injury.
I've looked at mounted lifts like Sure Hands but they're crazy money ($8k). Normal lifts won't work as the tub has no clearance under it and the lift legs can't be spread apart enough to straddle a corner of the tub.
Any ideas? New tub?
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Life of Botox
The first time I had botox injections in my bladder I had great results. No leakage for over a year.
The second and third tme I had botox injections i had about eight months of no leakage.
I just had my fourth round of botox in Jan 2016, here it is May 2016 and I'm already having leakage.
*note, this leakage started after trying Renacidin as a bladder rinse. Bladder spasms and leakage is a side effect. I haven't used Renacidin in about two weeks*
Could this leakage be a continued side effect of the Renacidin?
Is it possible that the botox has already worn off?
Does the bladder become immune to the effects of botox over time?
I was hopeful I had at least eight months before I needed more botox.
Thoughts?????
The second and third tme I had botox injections i had about eight months of no leakage.
I just had my fourth round of botox in Jan 2016, here it is May 2016 and I'm already having leakage.
*note, this leakage started after trying Renacidin as a bladder rinse. Bladder spasms and leakage is a side effect. I haven't used Renacidin in about two weeks*
Could this leakage be a continued side effect of the Renacidin?
Is it possible that the botox has already worn off?
Does the bladder become immune to the effects of botox over time?
I was hopeful I had at least eight months before I needed more botox.
Thoughts?????
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Rectocele
So yeah, that's next. Will create a thread to document how I dealt with that.
Waiting for a call to return to Toronto for a CT Scan and referral to general surgeon. I don't think there will be a fix for a paralyzed female to strengthen that area without it happening again, so probably opting for colostomy.
I'll update as I know more.
I went searching for info and found this thread at Apparalyzed that describes it perfectly:
http://www.apparelyzed.com/forums/to...eed-help-asap/
"I can feel the stool is protruding all around the anal area (like a fist of a hand) and it won't come out. It's like its this mass that can't fit through the whole. Like a fist size protrusion all around the anus. "
Later on in the thread, I noticed she pushed through the vagina to force stool out. Guess what I'm doing later?
Paralysis sux. Wondering if this is because of the hysterectomy I had in 2011 or my age or if paralysis is aging me quicker or just flaccid paralysis. Been steadily gaining weight since finished working 3yrs ago too.
Waiting for a call to return to Toronto for a CT Scan and referral to general surgeon. I don't think there will be a fix for a paralyzed female to strengthen that area without it happening again, so probably opting for colostomy.
I'll update as I know more.
I went searching for info and found this thread at Apparalyzed that describes it perfectly:
http://www.apparelyzed.com/forums/to...eed-help-asap/
"I can feel the stool is protruding all around the anal area (like a fist of a hand) and it won't come out. It's like its this mass that can't fit through the whole. Like a fist size protrusion all around the anus. "
Later on in the thread, I noticed she pushed through the vagina to force stool out. Guess what I'm doing later?
Paralysis sux. Wondering if this is because of the hysterectomy I had in 2011 or my age or if paralysis is aging me quicker or just flaccid paralysis. Been steadily gaining weight since finished working 3yrs ago too.
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Power assist wheels and smart drive for sale
Selling a Smart Drive MX-1 power assist used about a dozen time, works great! I have the original box and everything you need. Asking $2,000 obo, text or call me at 805-280-2858
I also have Emotion power assist wheels for sale, works great, had them for 8 years but only used the chair for about 3 years. Asking $2,000 for them also
My photos are too large to upload, sorry
I also have Emotion power assist wheels for sale, works great, had them for 8 years but only used the chair for about 3 years. Asking $2,000 for them also
My photos are too large to upload, sorry
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My Solution....so far....For Pressure Sores
I am T4 injured and also an insulin dependent diabetic. I've done a lot of research on this topic...and I've found that L-arginine taken with L-citrulline has greatly improved my pressure sore healing on both heels and 1 on buttocks over 3 weeks time. My wounds have been cut in half over this time. Really amazing! Do your research, this is something good for all of us!
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Gofreewheel and rack for sale!!
I have a used freewheel and rack in very good condition. I also have new parts and nuts and bolts that I ordered for spare. What you will need is to modify your footrest clamp or buy one (part number p102) on their website for $22. I would take $350 shipped. Pm or txt if interested. I would consider a trade for a handcycle plus cash on my end if you're in NJ.
Tin @ (732) 695-4210
Tin @ (732) 695-4210
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Rubber/latex catheters
There has been talk in the past about allergies from the rubber/latex catheters. What symptoms do you experience to know there may be an issue with the catheters? Could it cause skin issues on your butt?
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Knees together
How do you measure/fit a chair so that your knees sit close together? Surely it's not all from a cushion? Years ago I had a shadow and my knees sat .5" apart resulting in better sitting balance and the ability to carry things on my lap. Measuring for new chair today so thought I'd ask you guys for input
Thanks,
roller:grphug:
Thanks,
roller:grphug:
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Science and our future
I am always looking outside the box for things that stretch the imagination to its limits yet fall within the realm of reality. Here are a few finds that I think are food for thought.
This first video involves the increasing sophistication of prosthetics. A couple of exoskeleton type devices have been discussed and viewed in CC Forums. At best they are rather primitive and of little practical use. Some CC members disparage related R&D efforts, preferring that the money spent on them be invested in cure focused research. While waiting for a cure would it not be great to have a device with the functionality of the prostheses demonstrated in this video?
I found this next video to most provocative.
If it became possible to graft two precisely cut spinal cord ends together in a way that enabled them to properly function, treatment of our SCI could consist of transplanting our head onto the body of someone who is brain dead. Think it is far-fetched? Watch this video and you will be left wondering. Any volunteers?
Here is a complete text version of the HEAVEN project.
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3821155/
`
You all know about functifonal electrical stimulation. Here is a somewhat different version. Maybe we will one day be able ta walk with a walking aide (person).
`
This first video involves the increasing sophistication of prosthetics. A couple of exoskeleton type devices have been discussed and viewed in CC Forums. At best they are rather primitive and of little practical use. Some CC members disparage related R&D efforts, preferring that the money spent on them be invested in cure focused research. While waiting for a cure would it not be great to have a device with the functionality of the prostheses demonstrated in this video?
I found this next video to most provocative.
If it became possible to graft two precisely cut spinal cord ends together in a way that enabled them to properly function, treatment of our SCI could consist of transplanting our head onto the body of someone who is brain dead. Think it is far-fetched? Watch this video and you will be left wondering. Any volunteers?
Here is a complete text version of the HEAVEN project.
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3821155/
`
You all know about functifonal electrical stimulation. Here is a somewhat different version. Maybe we will one day be able ta walk with a walking aide (person).
`
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WTF is wrong with my Permobil??
So I've had a Permobil M300 for a bit over a year now, though my primary chair is manual, I use it around town a lot, and for specific things. But it hasn't had a LOT of use...however, right away the front caster was wobbling, then wore down, and eventually I noticed it was bent, and bending more. Then it fell off. Six months of red tape repair (not under warranty that part) with insurance and the stupid DME they sent me to, and it still wasn't fixed right. Even the caster wheel wasn't changed, came back all chipped and worn to nothing. I 'fired' them, and went back to the place that got me the chair. Just got it back, looked like a good job, got new tires all over...
However, taking it out for a spin, I noticed now that both casters making grinding metal noises when they rotate, and the one that had broke made a lot of cracking sounds. There was also like the sound of something hitting the big wheel, like when there's a little object rubbing. The battery drained extremely fast, and I barely made it home. I think what they didn't check was the chassis, that somehow it's gotten tweaked maybe. I just don't get how brand new parts, and still the casters are grinding and not moving freely. Ugh.
I think these rough sidewalks in San Diego suck for powerchairs these days. They are made for in the home, not that. Though I've never had this big of a problem. They're going to be coming back out to look at it, but nobody can seem tofigure this out! Not sure what to do, but it seems this chair is just constantly in repair!
However, taking it out for a spin, I noticed now that both casters making grinding metal noises when they rotate, and the one that had broke made a lot of cracking sounds. There was also like the sound of something hitting the big wheel, like when there's a little object rubbing. The battery drained extremely fast, and I barely made it home. I think what they didn't check was the chassis, that somehow it's gotten tweaked maybe. I just don't get how brand new parts, and still the casters are grinding and not moving freely. Ugh.
I think these rough sidewalks in San Diego suck for powerchairs these days. They are made for in the home, not that. Though I've never had this big of a problem. They're going to be coming back out to look at it, but nobody can seem tofigure this out! Not sure what to do, but it seems this chair is just constantly in repair!
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Thinking of switching wheel chairs
I am c7 complete I am a little over a year out I was fitted to a permobile F3 which isn't very durable in my opinion. Before this accident I was very active and traveled all over now I run a small car business from my iPad and sit at home and do absolutely nothing. I'd like to get active and a little more independent, I had more than enough down time . So here is my question , I'd like to get into a manual chair and let the electric chair collect dust, I don't have a clue to where to start with this process. I'm no longer in out patient therapy nor go to any therapy. Any help is appreciated..
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Best power assist wheels...WheelDrive
These seem to me to be the best power-assist add-ons out there! Made over seas but apparently you can get them here also. I did some research, and it seems they fit almost any chair. I love the continuous drive outer rims! Along with the regular power-assist inner rims.
https://www.youtube.com/watch?v=gZnFNrsE3h8
http://pushmobility.com.au/catalogue/wheeldrive/
https://www.youtube.com/watch?v=gZnFNrsE3h8
http://pushmobility.com.au/catalogue/wheeldrive/
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Looking for a good retractable seatbelt
Hello,
I'm a high functioning C6/8 quad who's been using a manual chair with power assist e-motion wheels for 12 years. I've never wanted a seatbelt because the one I had when I was newly injured 14 years ago would always get tangled up in my spokes or get in the way whenever it wasn't latched. After two unexpected falls this year when I was caught off guard, I decided I want to get a seatbelt for my chair. I bought a retractable seatbelt from seatbeltplus.com (which IS a good site) recommended by my DME supplier. The problem is the assembly and hardware around the spindle where the belt retracts into was too bulky for it to be at my side and would cause skin breakdown if I attached it behind me.
Does anyone know a good retractable seatbelt that works well for use with a manual chair? Any tips/suggestions are greatly appreciated.
Thanks much,
Tim
I'm a high functioning C6/8 quad who's been using a manual chair with power assist e-motion wheels for 12 years. I've never wanted a seatbelt because the one I had when I was newly injured 14 years ago would always get tangled up in my spokes or get in the way whenever it wasn't latched. After two unexpected falls this year when I was caught off guard, I decided I want to get a seatbelt for my chair. I bought a retractable seatbelt from seatbeltplus.com (which IS a good site) recommended by my DME supplier. The problem is the assembly and hardware around the spindle where the belt retracts into was too bulky for it to be at my side and would cause skin breakdown if I attached it behind me.
Does anyone know a good retractable seatbelt that works well for use with a manual chair? Any tips/suggestions are greatly appreciated.
Thanks much,
Tim
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